So this has become our every third weekend trip as we head to New Jersey to help with the care of Eleanor. She has been at his sister's home since Christmas Eve. We've worked out a schedule where Karen (a caretaker) comes every weekday while Marie is at work, their brother Joe and his wife Karen take Tuesday and Thursday nights during the week and then we all swap out every third weekend from Friday afternoon until Sunday afternoon. It about a 3 1/2 hour drive so we get to listen to some audio books on our way.
Eleanor has a room to herself but is bedridden. She is 89 and has dementia and needs assistance with all her physical needs. Hospice comes four times a week for bathing (which just takes place in the bed), sheet changing and checking vitals but we need to help with everything else. On our Saturdays I do her nails and hair while we watch old musicals on TCM and mostly just sit with her. She can't really engage in conversation but if you ask her a question she can answer. The answer isn't necessarily accurate but you can see her thinking. She doesn't know me anymore but generally knows her own children. She gets the boys mixed up but they DO look alike. Her diet consists mostly of baby food. Rice cereal mixed with fruit flavored Ensure for breakfast, then just fruits and meat & vegetable Gerber varieties. I baked some mincemeat chocolate chip cookies while we were there from her recipe and slipped her a few bites of those. We're not supposed to give her solids because of the choking hazard but she's certainly not crazy about the baby food so I just give her tiny pieces. Same with scrambled eggs and a little bit of buttered toast. So yeah, I figure she has so little to look forward to if she gets to have a little something with flavor in it....so be it. We did find that she liked canned tomato soup so we fixed that for her as well. She has lost weight since our last trip and seemed a little less engaged. But occasionally she'll say something funny that shows she's still in there somewhere.